This is the first – and only – page that doesn't lead with an aphorism, because I want it to be easily found if someone needs it. I know that, like me, many people have found the lack of information available from the so-called “professionals” to be disconcerting. Since I started this blog I have found many resources that I have linked to in various posts. I thought it was time to bring them all together to make a handy click-link resource page. Bookmark the page if it will be of help to you for your own support, or for education and awareness of your supporters.
Acquired Brain Injury - “An acquired brain injury, or ABI, is damage
to the brain that was not present at birth and is non-progressive.” This
link leads to a manual produced by the Brain Injury Network and provides
some pretty comprehensive information about ABIs. It’s a great site, and much of the content was
developed by survivors of Acquired Brain Injury.
American Association of Neurological surgeons This
site has some very good information on risk factors and warning signs/symptoms.
It also includes a list of some famous people who either died from or who have
survived aneurysms.
Australian Brain Aneurysm Support and Awareness and Brain Aneurysm Support Australia,
Australian Facebook support sites for survivors and supporters of those in
Australia diagnosed with annies.
Brain Aneurysm Foundation
“the world's only nonprofit organization
solely dedicated to providing critical awareness, education, support and
research funding to reduce the incidence of brain aneurysm ruptures.” – USA.
Excellent resource which is dedicated specifically to aneurysms which doesn’t
just lose them in amongst all the other medical information for brain related
issues.
Brain Foundation Australian site
which, like others, includes aneurysms amongst many other brain disorders. It
does, however, have a link to latest Australian research papers on aneurysms.
Brain Injury Australia Good
website which explains the difference between an Acquired Brain Injury (ABI) and genetic brain disorders.
Brainline information on Traumatic Brain Injury (TBI). Whilst an
aneurysm is an ABI, it can also be a TBI if it ruptures.
EV3 information booklet
on Pipeline Embolism Devices (PED). PEDs are a reasonable recent procedure. See
also Medscape for further information on Pipeline Embolism Devices
(PED), specifically for wide-neck aneurysms – both USA.
National Institute of Health (NIH) detailed description about cerebral angiogram
procedure - USA
National Institute of Health article on waiting for surgery from the patient’s
perspective - USA
The Aneurysm and AVM Foundation The TAAF’s Mission Statement: “Dedicated to bettering the
lives, support networks, and medical care of those affected by aneurysm and
other types of vascular malformation of the brain.” USA site which is big on research fundraising.
Also two little videos on the Brain Aneurysm Support Australia FB page: http://www.youtube.com/watch?v=nn9TNJsSpj4
– very good resource to show to family, friends and even workmates so they know
what you are facing and http://www.youtube.com/watch?v=jd5VQTS096E
– about PEDs.
Every little helps. If you
have some resources which are not mentioned here, please let me know so I can
include them!
